By Lenn Thompson, Executive Editor
I had never heard of Angelman
Syndrome
until my wife Nena came home one
day and told me that our friend's son had
just been diagnosed with the neuro-genetic disorder. It's
often
misdiagnosed as cerebral palsy or Autism and those afflicted have
little to no verbal communication, motor difficulties, developmental
delays, eating difficulties and more than 80% develop seizures prior to
age three.
Today, there isn't a cure for Angelman Syndrome and as with many
other syndromes, diseases and disorders, there is never enough money to
fund research.
Because Angelman
Syndrome has touched our lives and the lives of those close
to us, the New York Cork Report would like to help raise money and
awareness for Angelman Syndrome research (through the Angelman Syndrome
Foundation). We'll be hosting a wine tasting event at Roanoke
Vineyards on Sunday, September 12, 2010 from 1 – 5 p.m. Shinn Estate
Vineyards
will also be taking part in the event as our guest winery.
Tickets
are $35 and space is limited. Your ticket includes a side-by
side tasting of two of my favorite — and long sold out — 2005
merlots: Roanoke Vineyards 2005 Merlot and Shinn Estate Vineyards 2005
Nine Barrels Merlot. We'll have cheeses and other nibbles from the
Village Cheese Shop in Mattituck and Shinn Estate co-owner and chef David
Page will no
doubt add something tasty to the menu.
Throughout the event,
Roanoke's current releases will be
available by the the bottle and glass with 10% of all sales going to the
Angelman Syndrome Foundation.
I will also be organizing a silent auction/raffle if I can get enough
lots together. If you're a winery, brewery, restaurant or other business and are
interested in donating something, please email me.
To purchase your ticket, please call Roanoke Vineyards at
631.727.4161 to reserve your spot, as space is limited.